As promised in my last Blog post here is a Update On my health
Fashion Details In Photo:
Hair: *~*Damselfly*~* Lettice
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OutFit::::OTC:::001 - Short And Top Set Flower Mesh*
Nails:K-Pie Designs:Brain Invader Nails {Slink}
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Many of my followers know this, but some do not.
Many of my followers know this, but some do not.
I Have a Brain Invader, I have known about it for some time.
Do to the way it looks on the Mri, My Surgeon is Sure it is a Pineocytoma, which is a rare Tumor Of the Pineal Region of the brain.
The long term factors and risks of keeping this bugger
in my brain do to my current symptoms are as follows:
- Hydrocephalus (Water in The Brain- can Be Very dangerous)
- Seizures
- hypothyroidism
- Plus many others
(This list does not Include my already ever growing symptoms)
Right now my main Fear is Hydrocephalus,
As my last Mri showed more CF, Still in normal range they said,
but a lot more then when they first found My Invader.
With my ever growing head pressure
Hydrocephalus is becoming more of a possibility...
I also worry about
With my ever growing head pressure
Hydrocephalus is becoming more of a possibility...
I also worry about
getting Seizures...I have yet to have one, But they are very common
with Pineal Invaders and any brain mass.
So I am patiently waiting for my brain surgery that will give me my life back, so I can be the Wife and mother I so desperately want to be again.
I have two Kiddos, My son Who is 6 who has Autism, And my Daughter who is 4 who is a blossoming independent little one.
Tho you see me on sl, and posting blogs. Many of my followers may have noticed they have slowed down, or that it takes me a week or so to post one blog.
Well, that is do to many bad days back to back to back, and when I do post I sometimes double or triple post. That would be because...that was a good day, Or a sort of good day.
I have so much pride, So I want to keep a grip on everything and keep up with my blogs. Even Tho my sponsors say its okay, and that I can take my time.
I am a very Pride driven woman.
My husband even jokes that I have more pride then a man at times.
Well, that is do to many bad days back to back to back, and when I do post I sometimes double or triple post. That would be because...that was a good day, Or a sort of good day.
I have so much pride, So I want to keep a grip on everything and keep up with my blogs. Even Tho my sponsors say its okay, and that I can take my time.
I am a very Pride driven woman.
My husband even jokes that I have more pride then a man at times.
So... when it comes to asking for help.. It is honestly not a easy thing for me.
But I need YOUR help.
But I need YOUR help.
My out Of pocket is very high, and must be paid a month before my surgery date. I have had to reshed my surgery date so many times do to not having the out of pocket. That it is now Postponed. I am awaiting a change in insurance in Nov which Will drop the 167,000 USD that I have to pay out of pocket to 28-70K... so I am currently fund raising and hoping that By Nov, that
I will have the Out of pocket!
How can you help?
I have an event going on right now. Called Shopping for Pie. The second round officially starts July 29th. But some stores already have their items out.
It is a store to Store event.
Check it out the items for sale -here-
So far we have Raised
A little Over 40,000 Linden with this event!
Links To Click
Links To Click
My other blog post from a few months ago: -We need To Talk-
My Go Fund Me: -here-
Local News Story -Here-
I am also looking for more Stores to be apart of shopping for pie, or even someone to donate land
to do a actual land type event, opposed to the store to store type we are
doing right now, and someone to Help handle that said event. As
Its hard for me to remember and keep up with stuff.. my brain is a big fart!
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